Person high-fives a healthcare provider during a clinic visit.

Tools to Enhance Health Care for Adults with IDD

Adults with intellectual and developmental disabilities (IDD) often face barriers to quality health care, including limited access to services, communication differences, and access barriers to preventive care. To improve health care encounters, the IDD Toolkit provides resources for multiple audiences: clinicians, patients, family members, and other supporters.

Developed through a partnership between the Vanderbilt Kennedy Center and Surrey Place, and based on the Canadian Consensus Guidelines for the Primary Care of Adults with Developmental Disabilities, the toolkit was adapted for use in the United States with input from clinicians, self-advocates, and family members. Its goal is to provide easy access to best-practice resources that support better health outcomes and more equitable care for adults with IDD.

Read about the IDD Toolkit and its development.

Healthcare provider and patient reviewing information.

These tools and forms help physicians and other clinicians provide quality clinical care for adults with IDD.

These tools and forms are for people with IDD to use or fill out (with support as needed from family members or others, such as direct support professionals), and to share with clinicians to make health care visits or hospital stays more successful.

“The IDD Toolkit has become a valuable resource in my practice. It helps me have more effective conversations, making appointments more productive and person-centered.”

Beth M., MD
Vanderbilt University Medical Center

The IDD Toolkit brings practical, evidence-informed physical and mental health tools into the hands of people who need them most—clinicians, individuals with IDD, and their families—empowering everyone to better recognize needs, navigate challenges, and support a patient’s overall health and well-being.
 
Verity Rodrigues, Ph.D., HSP

The IDD Toolkit is a great place to find an abundance of excellent resources in one location. Anyone who cares for people with IDD will find it valuable—I especially appreciate the health checklists to know I’ve covered all of the bases when providing care.

Beth Malow, M.D.

As a primary care doctor, the IDD Toolkit is a great resource for me, especially the Health Watch tables, which I incorporate into my health maintenance plan for patients with those conditions. As an educator, medical students have told me that the IDD Toolkit is one of the most valuable resources they have learned about for taking care of people with disabilities. The Approaches to Care resources helped them to prepare for a visit with a person with IDD.

Tiffany Hines, M.D.

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